Tuesday, March 25, 2014

Kids say the darndest things


In the last week, I've had two child-saying-something-about-cancer-experiences that have been, well, awkward.

Miss 11 and I were visiting a group she will almost positively join once we move. It's to replace a group we will be too far from to continue going to.

Anyway, we went and visited. It was lovely. She right away connected with another child there (who happens to be her same age, plays softball, and is homeschooled)! Everyone seemed friendly and welcoming and the group seems to participate in a lot of things. She was so happy at the meeting she asked if we could join right then (um, no, because you are already part of the other group and need to finish the year there).

As we were getting ready to leave, my kids were talking about their tablets. They each have a tablet and/or computer and/or mp3 player. They are blessed with technology. Pretty much all of it gifts from relatives or hand-me-downs as the next older child gets a gift! However, their original tablets (which are eye pads. Which I type as eye pads to keep spam bots from searching and leaving spam) were given to them when I was diagnosed with cancer. Because people wanted to help anyway they could (and it did).

So my daughter says, without missing a beat "Yeah, thanks mom for getting cancer! It worked out nice for us!"

Now, first of all, my daughter isn't really happy I got cancer. No tech can be better than having a healthy, active mom. Second of all, no one there knew I had cancer. This is not the first time something like this has happened. For my kids, cancer is a way of life. I had it. They lived through it. They were pretty young. My youngest probably doesn't have memories of me before cancer. We are still dealing with side effects from treatment and I still go to a fair amount of doctor's appointments. For us, in our house, it is what it is. For everyone else though, these statements can be jaw-dropping.

Cue the awkward pause. The adults looked at me (which is what usually happens).

"You had cancer?" they manage to spit out.

Yes, I say, sometimes I'll say breast cancer about 3 years ago, sometimes I don't give more info.

Another pause. Then, every time, a form of, "Well, you look good! I'd never have guessed you had cancer!"

Thank you I say, because I mean it. I appreciate not looking sick. I looked sick for a while. There was a time when if you were meeting me for the first time you would have known for sure it was cancer or you would have known for sure something big was going on.

But it's so, so very awkward for me, for the other adults. People aren't sure what to make of it. I think in general, the younger someone is, the more shocking hearing about cancer is. I don't know for sure, but it's my guess.

Then the kids are already talking about the next thing. The moment is gone. It almost feels like a secret has been told and before you can finish processing it, the conversation has moved on. Not that my cancer is, has been, or ever will be a secret, but it feels like it.

It is hard to meet people for the first time - I often wonder, do I mention cancer? Do I not? It will probably come up eventually, so I tend to wait for that moment when it comes up naturally ....

For example a few weeks ago, at the same child's basketball game, another mother asked me about my curly hair. So I said "Well, it was never this curly! But then I went through chemo and this is how it grew back. It's been a few years and I'm still not used to it." This lead to a convo about how I had cancer, what kind, how were things today. There is still some awkwardness there, but it's much less. The conversation flows more naturally and doesn't feel so forced.

I wonder, will it always be like this? Will time lessen it. In 10 years, I doubt my children (who won't really be children anymore) will just blurt out "my mom had cancer!" Unless, I guess, it comes back, but that's a whole different ball game.


Fast forward to today. We learned that we have two new babies coming in the family in the fall. I was talking to Mr. 8. We were talking about how exciting it was and how babies are always a good thing. I told him "I can't wait for these babies to be born so I can hold them! I love babies! And I love them even more when I'm not the one who has to wake up in the middle of the night with them!"

He laughed at that,  and agreed it's better to get to just hold a baby for a bit than have to wake up in the middle of the night. Then he says, "Boy mom, you must be really happy you got cancer so you can't have any more babies! I bet waking up with three of us are enough! And if you didn't get cancer, how many more babies would you have had? Probably a lot."

Um, oh, yeah, wait, what? I didn't even know what to say.

I can get it from his perspective. I can get how this makes sense. I can see his 8 year old brain trying so hard to make sense of everything. But, um, happy I got cancer? Yeah, no.

I took a few seconds and I I just told him that. "You know, I understand what you're saying, but I'm not actually happy I got cancer. Though, I love you and your sisters and I think three kids is a wonderful number to have! Even without cancer, I probably wouldn't have had any more kids."

He said ok, okay, then asked if I wanted a rainbow loom bracelet.

Just like that. Once again, this bombshell (to me anyway) gets dropped. I feel thrown off. And within seconds the kids are moved on to the next thing.

And I have to remind myself, this is their life. Cancer has existed for them for what is most of their life. Not in actual time, but in what they can remember of life. It is what it is. At home we talk openly about it (though, I want to point out, it's not like we sit around and talk about it all the time). So it makes sense that the can drop it into any conversation without giving it a second thought.

It still throws me off though. It still gives me pause. But, it also makes me glad they can talk about it, that they don't feel like it needs to be a secret. When they voice these thoughts and ideas, it gives me and my husband a chance to talk about it.

I think at the end of the day, I prefer it this way.

Though, I still don't like the awkward pauses it can bring!


Friday, March 21, 2014

Is It Friday Yet?

Thankfully, yes, yes it is Friday.

It's been a long few weeks.

Our house has been crazy - we've been painting and had new carpet put in this week. So furniture was moved (mostly to the garage). Thankfully, it's all mostly done now and we can start to put the house back together. Well, minus all the stuff we need to pack because clutter won't help sell the house.

On top of that, over the last few weeks the garage door broke, a toilet broke and kind of flooded (but thankfully not too much) the bathroom, and my car was in the shop.

In the same last two weeks, cancer has stolen the lives of two people I know.

And oh, my headaches are back. And so is a terrible bout of insomnia.

I might be just slightly stressed over here. And by slightly I mean, of course, absolutely totally and completely stressed.

The house is being put back together - which is nice. The garage is fixed. The car is fixed. The toilet is almost fixed. Soon we will be moved and things will start to fall into a nice routine. That's all the easy stuff.

The hard stuff is the loss. The unfairness of it all. I just, I just don't know. I've been thinking about this. Since getting cancer, I've connected with a lot of people who also had or have cancer. This means loss is now a regular part of my life. It never gets easier. Of course, all loss isn't born of this cancer-connection, but much of it is. There's probably a lot more to say about all of this. For the moment, I'll leave it at I can't wait for the day we can cure cancer. All cancers. Regardless of where they strike and who they strike.

But today is Friday. Which means it's the weekend. This weekend we celebrate my husband's birthday. He deserves a fabulous birthday. He's been working so hard: at work, at our house, at the house we are moving too.

We will celebrate him this weekend. We will try to put the house more together and maybe pack a few more things. I will find time to just be. To just be still.

Wednesday, March 19, 2014

Knit-A-Thon

Very soon (like 10 weeks!) I'll be walking in my third Avon 2-Day walk. And in order to walk in it, I have raise a bit of money. Of course, by a bit, I mean a lot! 1800 to be exact! This year, I'm not even close to it yet!

So, this year, I'm shaking it up a bit. I'm going to do a knit-a-thon.

On Saturday April 26 and Sunday April 27!

The date is important because April 26 will be the third anniversary of my diagnosis.

I can't think of anything better I'd like to do on that day than knit all day.

So I will.

The plan is to knit for 24 hours. But I'm also a mom and I have to function, so I'm actually doing 12 hours on Saturday and 12 hours on Sunday. 10:30am to 10:30pm.

10:30 am is about the time the doctor called to give me the news.

IMG_7209 All day I'm going to be knitting. I will be working on either a scarf (or two) or some washcloths. 

At the end of my knit-a-thon I'm going to randomly give what I've made to the people who donate to me.

This is kind of bittersweet too because I've also decided that this will be my last Avon walk, at least for a while.

The walk is hard - which I mean, walking 39 miles isn't easy, but it's just too much for me. It's very hard on me physically.

It's also hard on my family. It is a lot of time.

I know it's for a good cause. I believe in making a difference. But it's also time for me to make a difference in a different way.

That said, I'm still excited about walking this year for the third time. And I can't wait to do my knit-a-thon. It will be such a blast.

Anyway, if you'd like to learn more about my walk, here is my Avon Page!

I might live-blog my knit-a-thon too, I'm not sure yet. I think twitter and instagram might be a better platform that day. Naturally, I'll keep you all posted!

Monday, March 17, 2014

Blogger Comments

So. I really like blogger.

It's easy to use. I've figured out how to personalize the blog pretty easily. And, of course, it's free.

Because it's free, I try to not complain too much.

However.

Ahem.

However, the commenting system kind of leaves a lot to be desired.

When you leave a comment here, I get an e-mail with the comment. What I'd LOVE to do more often than not, is e-mail a response back. Except for most of you, you haven't linked your blogger account to an e-mail, so I can't.

So, here's where I beg: Please, please, go link your blogger account to an e-mail.
It's not hard, and I'll try to explain it to you.

  1. 1. Go to your blogger profile. (I get to it by going to blogger.com and clicking the arrow next to my picture and name in the upper right hand corner).
  2. 2. On that page, click "edit profile" (again in the upper right hand corner)
  3. 3. Scroll down until you get to the "Identity" section. Under user name, will be a spot for e-mail. Enter one in!
  4. Save changes and go about your lovely day
If you do that, when you comment to me, and I get that e-mail, I will be able to reply to your comment. Especially if you ask a question. You won't have to come back to the post, look at the comments and see if I've replied there - which, I fully admit I've almost never remembered to do myself!

Anyway, this is a totally selfish request, I know! But it would be a wonderful thing to do. Then leave me a comment here and I'll e-mail you a hi back! =)

Friday, March 14, 2014

You're Doing Cancer Right

Pink RibbonA while ago, in a span of a few days, I read on-line and heard some pretty disheartening comments, both from people who had/have breast cancer and those who have not. Comments like "Who would do that?" upon learning someone made a different choice from them. The worst of the comments I read I won't even repeat here - they were just plain mean and do not need to be repeated.

The people who think these things, who say these things, they won't be here reading. But maybe you've been subjected to these comments. Maybe you've had someone say it directly to you, or you read it somewhere, or you overheard it. And even though you knew it didn't matter, it still stung and hurt. Because this cancer journey sucks. It's full of choices - choices you put a lot of thought into, choices that you made because it was the best decision for you and at the end of the day that's all that counts. And the last thing you need is someone, who may or may not have been on the same journey and may or may not have made the same decision as you, looking at you with a look of disbelief and going "Oh. Why would you do that?" or saying something hurtful.

So, let me just tell you. You are doing it right.

Lumpectomy? Mastectomy? Double mastectomy? You made the right decision for you.

Reconstruction? No reconstruction? You made the right decision for you.

Tissue Expanders? TRAM (transverse rectus abdominis muscle) Flap? DIEP (deep inferior epigastric artery perforator)? Latissimus dorsi flap? You made the right decision for you.

Nipple reconstruction? Areola tattoo? 3D Nipple tattoo? No nipple? No tattoo?  You made the right decision for you.

Hormone therapy? Deciding not to do it? Stopping it early? Switching what med you take? You made the right decision for you.

It doesn't matter what anyone else thinks or says, trust that you made the right decision for you. Because you did. Even if someone else did something else. Even if someone else thinks it's not the right choice. Trust yourself. You made the right decision. You are doing what is best for you. You are doing cancer right, because at the end of the day there are about a million ways to do cancer "right". And "right" will look different for different people.

And if you are going around telling people how they aren't doing cancer right, well then you are doing it wrong.