I'm here and alive. I just haven't been on the computer too much lately. Sorry about that. I hate to leave everyone hanging, but sometimes it's just hard to get on here.
So here's an update:
Last week I started my new medicine. I am now on Taxol and Herceptin. The Taxol I get every other week for 8 weeks. The Herceptin is every week for 8 weeks, then it switches over to every 3 weeks for one year. Yes, you read that right ... I will be on Herceptin for one year. The good news is the as far as I can tell the herceptin has almost no side effects (there are other things going on that I don't believe are related to this medicine, but it's hard to tell with the taxol right now) and only takes 30 minutes to get so those visits aren't hours long.
The Taxol is much much much much (yes, we are stressing the much) easier than the other two medicines were. That being said, over the weekend I was hit with intense muscle/joint pain that essentially kept me in bed all weekend. The blessing here is that it happened over the weekend, when Saint Husband is home to, well, do everything!
My energy is still tanking. The chemo has been and continues to lower my red blood count every week. It is very likely that soon I will have to get a blood transfusion because of the red blood cell count. I won't lie, thinking about getting a blood transfusion scares me. I know it's safe but still. There is fear there. But. I'm also committed to doing whatever it takes to get through this in one piece, so if we have to add that to the list of things to do, so be it.
However, that is not the most nerve-wracking things on my mind right now. Maybe you've heard it - it's just starting to hit news outlets, but there is a shortage of many chemotherapy drugs in the US right now (here's one article if you are interested). Taxol (yes, the one I'm on right now) is one of the drugs there is a shortage of. My oncologists office does not day to day whether it will be available. Last Wednesday when I went they had it, but tomorrow? The next day? Next Wednesday when I go into get it again? It may not be available. My doctor has a back-up medicine they will use instead, so I won't have to go without chemo while we wait for it to become available. But some people right now are not able to get the chemo they need and it really makes me mad. Also. I don't want a back up plan. I want the plan A. I don't know, cancer and plan B just don't seem like they should go together. But at least there is a back up plan. As I said, some people don't have other medicines they can take instead.
Anyway, that's what's going on around these parts.